Somos un grupo de padres con hijos que padecen Sindrome Dravet o Epilepsia Mioclónica Severa de la Infancia, un sindrome que corresponde a las epilepsias refractarias, quiere decir que son resistentes a los fármacos y no hay un tratamiento específico que de resultado. Nuestros niños pueden hacer de una a cientos de crisis epilepticas por día provocando un retaraso en su desarrollo general. Algunas de las características son; rasgos autistas, problemas motrices importantes, dependencia absoluta,problemas en el lenguaje y una dependencia absoluta. Formamos la Asociación Dravet Uruguay con la finalidad de mejorar la calidad de vida de nuestros hijos, ya que lamentablemente falta mucho camino por recorrer en cuanto a la implementación de políticas referentes a salud, farmacología y educación. Gracias por incorporarnos, estamos abiertos y dispuestos al diálogo y negociación para trabajar en una modificación de la ley 18.651. Afectuoso saludo a todas las Asociaciones, Mónica Umpiérrez , secretaria de Asociación Dravet Uruguay
Estimada Mónica, nuevamente bienvenidos al Plenario de Asociaciones, ámbito en el cual trabajamos en favor de intereses comunes de muchas personas y familias. Saludos, Agustín
The Great Dr.OLIHA herbal medicine is a good or perfect cure remedy for HIV Virus, I was diagnose of HIV for almost 5 years, everyday i am always on research looking for a perfect way to get rid of this terrible disease as i always knew that what we need for our health is right here on earth though the scientist say there is know cure for this disease,on my search I saw some different testimony on how Dr. OLIHA has been able to cure HIV with is herbal medicine. I decided to contact this man, I contacted him and he guided me on how to purchase for the medicine. I asked him for solutions and he started the remedies for my health. Thank God, now everything is fine, I’m cured by Dr. OLIHA herbal med icine, I’m very grateful to Dr. OLIHA, reach him now on (oliha.miraclemedicine@gmail.com ) or you can also call him on +2349038382931.
Dr. OLIHA Also Cures: 1. HIV/AIDS 2. HERPES 1/2 3. CANCER 4. ALS (Lou Gehrig’s disease) 5. Hepatitis B 6. chronic pancreatic 7. Emphysema 8. COPD (Chronic Obstructive Pulmonary Disease) 9. Asthma 10.Acute angle-closure Glaucoma 11. Diabetes 12.CHRONIC PANCREATIC 13.CHLAMYDIA 14.ZIKA VIRUS
I can’t stop to thank Doctor Agbomian Sunday for a wonderful work he have done. I don't usually do this but I made a promise, I have been dealing with Genital herpes and you'll know how nasty it is and I tried really hard to get rid of it. A friend of mine introduce me to a herbal doctor called Dr Agbomian. Which normally I doubted. I got his medication in February 02 and I took it with the instructions he gave me for some time and he ask me to go for a check-up and I can't believe my doctor told me that I don't have herpes in my system and that was a big relief. I'm recommending Dr Agbomian to you'll. He's so honest. Here's his contact info. +2349153314157 8h Delivers to any countries.
Somos un grupo de padres con hijos que padecen Sindrome Dravet o Epilepsia Mioclónica Severa de la Infancia, un sindrome que corresponde a las epilepsias refractarias, quiere decir que son resistentes a los fármacos y no hay un tratamiento específico que de resultado. Nuestros niños pueden hacer de una a cientos de crisis epilepticas por día provocando un retaraso en su desarrollo general. Algunas de las características son; rasgos autistas, problemas motrices importantes, dependencia absoluta,problemas en el lenguaje y una dependencia absoluta.
ResponderEliminarFormamos la Asociación Dravet Uruguay con la finalidad de mejorar la calidad de vida de nuestros hijos, ya que lamentablemente falta mucho camino por recorrer en cuanto a la implementación de políticas referentes a salud, farmacología y educación. Gracias por incorporarnos, estamos abiertos y dispuestos al diálogo y negociación para trabajar en una modificación de la ley 18.651.
Afectuoso saludo a todas las Asociaciones, Mónica Umpiérrez , secretaria de Asociación Dravet Uruguay
Estimada Mónica, nuevamente bienvenidos al Plenario de Asociaciones, ámbito en el cual trabajamos en favor de intereses comunes de muchas personas y familias. Saludos, Agustín
Eliminarhttps://www.rareconnect.org/es/community/sindrome-de-dravet/learn/patient-groups/see-all?page=2
EliminarThe Great Dr.OLIHA herbal medicine is a good or perfect cure remedy for HIV Virus, I was diagnose of HIV for almost 5 years, everyday i am always on research looking for a perfect way to get rid of this terrible disease as i always knew that what we need for our health is right here on earth though the scientist say there is know cure for this disease,on my search I saw some different testimony on how Dr. OLIHA has been able to cure HIV with is herbal medicine. I decided to contact this man, I contacted him and he guided me on how to purchase for the medicine. I asked him for solutions and he started the remedies for my health. Thank God, now everything is fine, I’m cured by Dr. OLIHA herbal med icine, I’m very grateful to Dr. OLIHA, reach him now on (oliha.miraclemedicine@gmail.com ) or you can also call him on +2349038382931.
ResponderEliminarDr. OLIHA Also Cures:
1. HIV/AIDS
2. HERPES 1/2
3. CANCER
4. ALS (Lou Gehrig’s disease)
5. Hepatitis B
6. chronic pancreatic
7. Emphysema
8. COPD (Chronic Obstructive Pulmonary Disease)
9. Asthma
10.Acute angle-closure Glaucoma
11. Diabetes
12.CHRONIC PANCREATIC
13.CHLAMYDIA
14.ZIKA VIRUS
I can’t stop to thank Doctor Agbomian Sunday for a wonderful work he have done. I don't usually do this but I made a promise, I have been dealing with Genital herpes and you'll know how nasty it is and I tried really hard to get rid of it. A friend of mine introduce me to a herbal doctor called Dr Agbomian. Which normally I doubted. I got his medication in February 02 and I took it with the instructions he gave me for some time and he ask me to go for a check-up and I can't believe my doctor told me that I don't have herpes in my system and that was a big relief. I'm recommending Dr Agbomian to you'll. He's so honest. Here's his contact info. +2349153314157 8h Delivers to any countries.
ResponderEliminar